Pancreatic Cancer

Pancreatic cancer is the eighth most common cancer in Europe, yet knowledge of the disease is alarmingly low. One and five year survival rates for pancreatic cancer are lower than all other digestive cancers. Symptoms can often be hard to identify, making it difficult to diagnose early and in time for surgery.

Patient organisations are welcome and encouraged to use the resources found here on social media, websites, newsletters and all other channels.

All information is taken from the UEG Survey of Digestive Health Across Europe, unless otherwise stated.

There are currently no screening programmes for Pancreatic Cancer

  • There were 78,654 new cases of pancreatic cancer in the EU in 2012
  • The incidence rate of pancreatic cancer is 15.6 per 100,000 of the population
  • For men, the incidence rate is 16.2 per 100,000 of the population
  • For women, the incidence rate is 15.1 per 100,000 of the population
  • Incidence among men appears to be highest in Eastern Europe, including Czech Republic, Slovakia, Hungary and Latvia
  • Incidence among men is lowest in Sweden, Cyprus, Portugal and Belgium
  • Incidence among women is highest in Czech Republic, Slovakia, Slovenia and Denmark 
  • Incidence among women is lowest in Cyprus, Portugal, Sweden and Greece
  • Across the EU between 2000 and 2012, one year survival rates for pancreatic cancer were 23%
  • Across the EU between 2000 and 2012, five year survival rates for pancreatic cancer were 6%
  • These one and five year survival rates are the worst of all gastrointestinal cancers (includes pancreatic, oesophageal, gastric, colorectal, liver and gallbladder cancer)

'Pancreatic Cancer Across Europe - Taking a united stand' provides a concise overview on the state of pancreatic cancer across the continent. UEG and its partners are also calling on six initiatives to transform pancreatic cancer outcomes by 2035, which include an increase in research funding and the delivery of a pan-European standard of care. 

 

Access the report

Canvassing the opinions of leading European digestive cancer specialists, stakeholder organisations and patient groups, the report highlights the scale of alcohol consumption across Europe and its direct and indirect impact on digestive cancers, including pancreatic cancer.

Access the report

Pancreatic Cancer
10 Things You Need to Know - Pancreatic Cancer Europe
Know the Signs - Pancreatic Cancer Europe
 

Pancreatic Cancer Declaration - Pancreatic Cancer Europe

A declaration on Pancreatic Cancer calling for concerted action across Europe by 2020. Including 5 key steps that must be taken to improve patient outcomes.

Click here to download.

Patient organisations are encouraged to sign up and support the Declaration here.


GP Advice Leaflet - Pancreatic Cancer Europe

A quick guide for GPs on when to refer patients to pancreatic cancer specialists.

Click here to download.


Pancreatic Cancer White Paper - EUPancreas

The Pancreatic Cancer White Paper was launched by the EAMP in collaboration with EUPancreas. It is a direct appeal to policymakers, legislators, and regulators to encourage innovation, to enhance prevention, and to broaden access to treatment. It also calls on all stakeholders to work more closely together to reduce the burden of pancreatic cancer on patients and on society.

Click here to download.


Understanding Pancreatic Cancer Booklets - Pancreatic Cancer Action

A range of short advice guides for patients, developed and reviewed by medical professionals and people who have been affected by pancreatic cancer. Please click each one to view.

  1. What is pancreatic cancer and how is it diagnosed?
  2. Surgery for operable pancreatic cancer
  3. Treatments to control the symptoms of pancreatic cancer
  4. Chemotherapy and how it is given
  5. Diet and Nutrition for Pancreatic Cancer
  6. Eating after Duodenal Stent
  7. Pancreatic Cysts and Cystic Tumours


Pancreatic Cancer: Stuck in the 1970s.


10 Things you didn't know about Pancreatic Cancer - from Cancer Research UK.


Do you know the symptoms of Pancreatic Cancer? - from Pancreatic Cancer Action.

Global Patient Organisations

World Pancreatic Cancer Coalition

Through global collaboration we raise awareness of pancreatic cancer, and by coming together we strengthen the efforts of all our member organisations.

W: www.worldpancreaticcancercoalition.org
E: clara@worldpancreaticcancercoalition.com
T: https://twitter.com/worldpcc
F: https://www.facebook.com/worldpcc

European Patient and Stakeholder Organisations

Pancreatic Cancer Europe

Pancreatic Cancer Europe is a European multi-stakeholder platform which aims at bringing together experts from all over Europe including academics, physicians, politicians, patient groups, journalists and industry with a common interest and willingness to improve care for patients with pancreatic cancer.

W: www.pancreaticcancereurope.eu
E: www.pancreaticcancereurope.eu/contact

EUPancreas

EUPancreas is a European network that aims to unite pancreas cancer research groups across Europe and provides an innovative and unique platform for collaborating and sharing information, ideas and experience. The group interacts with patient organisations and other key European stakeholders to better patient care.

W: www.eupancreas.com
E: nmalats@cnio.es or www.eupancreas.com/contacts
T: twitter.com/EUPancreas

National Patient Organisations

Bulgaria: APOZ, National Association of Patients with Oncological Diseases 
Cyprus: KHYD, Help those with Cancer
Cyprus Association of Cancer Patients and Friends
Czech Republic: League Against Cancer Prague
Estonia: Estonian Cancer Society
France: Fondation ARCAD, Aide et Recherche en Cancérologie Digestive
Germany: Heidelberg European Pancreas Center
Greece: "KEFI"" Association of Cancer Patients of Athens"
Hungary: Recovering together
Ireland: Irish Cancer Society
Italy: Italian Federation of Volunteer-based cancer organisations (FAVO)
Italy: Istituto Pancreas Verona
Latvia: Europacolon Latvia
Lithuania: Lithuanian Cancer Patient Coalition (POLA)
Poland: Polish Cancer Patient Coalition (PKOPO)
Portugal: EuropaColon Portugal
Slovakia: EuropaColon Slovakia
Slovenia: Cancer Patients Association of Slovenia
Spain: GEPAC, Grupo Espanol de Pacientes con Cancer
Sweden: Gastrocentrum, Karolinska University Hospital
PALEMA
Romania: Romanian Pancreatic Club
United Kingdom: Pancreatic Cancer Action
United Kingdom: Pancreatic Cancer UK

UEG Patient Affairs
Luke Paskins
_______________________________________________

T  +44 (0) 1444 811099
_______________________________________________

patientaffairs@ueg.eu

Information in this section has been checked and where necessary updated by UEG pancreatic cancer experts Matthias Löhr and Sorin Barbu. Last updated September 2016.