UEG is dedicated to working with patient organisations and key stakeholders in the interests of raising awareness of GI issues and bettering patient outcomes.
The UEG Patient Affairs team are actively engaging with a range of patient organisations to share best practice, increase awareness of UEG activities, promote greater awareness of gastroenterology diseases and to discuss potential collaborative opportunities. If your organisation would like to work with UEG in any of the ways listed below, please contact the UEG Patient Affairs team using the details listed in the contact section.
UEG is dedicated to working with patient organisations and in 2016 published their patient policy, to guide all future working with patient organisations.
To read the policy, visit the patient affairs policy page.
UEG have developed patient information videos, in partnership with patient organisations and scientific societies and will continue to do so in the future. These videos have been produced to help patients understand the current issues and evidence for these disease areas and outline what the future might look like. Patient organisations are welcome to use these videos on their websites, e-newsletters and social media portals.
Diet, Lifestyle and GI Cancer - produced in collaboration with EuropaColon
Hepatitis - produced in collaboration with ELPA
Childhood Obesity: The impact of nutrition on health - produced in collaboration with World Digestive Health Day, ESNM, ESPGHAN and WGO
Gut Microbes: Importance in Health and Disease - produced in collaboration with AGE, AOECS, EuropaColon, ECPC, EFCCA, ELPA, WDHD
UEG Week 2016
This year at UEG Week 2016, the Austrian patient association OMCCV, will be holding a members meeting with a leading Austrian gastroenterologist to discuss transitionary care between adolescence and adulthood for patients suffering IBD.
Similarly, Austrian patient organisations will be attending to exhibit in the association hall at the congress and members of their organisations will be attending the congress to report back to their members on the latest developments in the disease areas that they cover.
UEG Week 2015
UEG has been working in collaboration with Europacolon for UEG Week’s colorectal cancer awareness campaign. EuropaColon displayed their interactive inflatable colon at the Congress Centre to coincide with UEG’s #FaceUp2CRC campaign, which was officially launched at UEG Week.
UEG was also proud to welcome the European Liver Patients’ Association (ELPA), the European Federation of Crohn’s and ulcerative Colitis Associations (EFCCA), the Associació Celíacs de Catalunya and Asociación de enfermos de Crohn y Colitis Ulcerosa de Catalunya (ACCU) who attended or exhibited at UEG Week to gather information for their members’ newsletters and magazines.
UEG has an active press and media relations office. It undertakes a number of media drives through out the year, covering all GI issues and places UEG experts in media outlets around the world.
The media team regularly work with patient organisations in order to offer scientific and expert commentary as well as patient perspectives.
Patient organisations are encouraged to contact UEG's patient affairs team below to express an interest in being involved in future press activity.
UEG are active on social media, promoting campaigns and engaging with patient organisations via the UEG Twitter account @my_UEG.
UEG share patient organisation news and resources, support awareness days and take part in and host Twitter chats. Some of the patient organisations that UEG has collaborated with include: EuropaColon, the World Hepatitis Alliance, ELPA, EFFCA, PCE and WGO.
Last year UEG ran the #FaceUp2CRC campaign in an effort to unite the public and the medical community in raising awareness of colorectal cancer (CRC) and the importance of screening.
UEG organise patient events and public health days with local, national and international patient organisations.
At UEG Week 2016, Austrian patient organisation OMCCV are due to hold a members' meeting at the congress with UEG experts present to deliver a talk on paediatric IBD.
In 2014, UEG hosted a high level 'think-tank' to come up with innovative solutions for increasing the particiption of colorectal cancer screening programmes. The think-tank included representatives from the European Cancer Patient Coalition (ECPC), Europacolon, the European Patients Forum, Stop Darmkanker, the European Society for Primary Care Gastroenterology, UEG and the World Endoscopy Organisation (WEO).
Similarly, UEG worked with EFCCA, the Austrian Crohn's Disease & Ulcerative Colitis Association (OMCCV), the association for celiac sufferers in Austria, ÖPRD and EURAG Österreich to hold a public health day focusing on the latest research, thinking and treatment developments in IBD, Coeliac Disease and IBS.